Putting the Law in Context of Mental Capacity Conundrums
Speaker: Prof. Keene
Date: 29 January 2024
The Starting Point
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Re T (Adult: Refusal of Treatment) [1993] Fam
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An adult patient who...suffers from no mental incapacity has an absolute right
to choose whether to consent to medical treatment, to refuse it or to choose one
rather than another of the treatments being offered... This right of choice is not
limited to decisions which others might regard as sensible. It exists
notwithstanding that the reasons for making the choice are rational, irrational,
unknown or even non- existent.
Capacity And Consent: The Three Questions From An MCA 2005 Perspective
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Three questions in this order A Local Authority v JB [2021] UKSC 52
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(1) Is the person able to make a decision? If not:
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(2) Is there an impairment or disturbance in the functioning of the person's mind
or brain? If so:
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(3) Is the person's inability to make the decision because of the identified
impairment or disturbance?
How far does this extend? An NHS Trust v ST & Anor [2023] EWCOP
40
Is Consent Enough?
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Is capacious, informed and settled enough?
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What happens if someone refuses to give any reasons at all for their decision?
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And see APM guidance on ventilator removal at the request of patients with MND:
doctor should record that
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The alternative approaches are known and rejected by the patient •
The patient knows they will die as a consequence of withdrawal
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There is no coercion, nor is the decision driven by mistaken kindness to the
family
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[is] a settled view of the patient
Where Capacitors Consent Is Insufficient
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JJ, R (On the Application Of) v Spectrum Community Health [2023] EWCA
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The common law authorities so far considered therefore establish (i) that a
patient with capacity can choose between various treatment options, which
choices have to be respected by the clinicians even if the treatment chosen is
not the one that was recommended by the treating team and (ii) a patient with
capacity can refuse medical treatment. That then leaves the question as to
whether, as advocated by Ms. Weereratne, there is a common law right of
autonomy which allows a patient to demand, and obliges a clinician to provide,
medical treatment that is not offered to that patient by their doctors.
Capacity In The Bedroom
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A Local Authority v JB [2020] EWCA Civ 735; A Local Authority v JB [2021] UKSC
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93. The analysis of capacity with regard to sexual relations in the case law has
hitherto been framed almost exclusively in terms of the capacity to consent to
sexual relations. But as this case illustrates, giving consent to sexual relations is
only part of the decision-making process. The fundamental decision is whether
to engage in sexual relations.
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94. [...] The word "consent" implies agreeing to sexual relations proposed by
someone else. But in the present case, it is JB who wishes to initiate sexual
relations with women. The capacity in issue in the present case is therefore JB's
capacity to decide to engage in sexual relations. In my judgment, this is how the
question of capacity with regard to sexual relations should normally be assessed
in most cases.
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95. When the "decision" is expressed in those terms, it becomes clear that the
"information relevant to the decision" inevitably includes the fact that any person with whom P engages in sexual activity must be able to consent to such
activity and does in fact consent to it. Sexual relations between human beings
are mutually consensual. It is one of the many features that makes us unique. A
person who does not understand that sexual relations must only take place when,
and only for as long as, the other person is consenting is unable to understand a
fundamental part of the information relevant to the decision whether or not to
engage in such relations.
Capacity And The Convention On The Rights Of Persons With Disabilities
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What implications flow from the CRPD? In particular from article 12:
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Equal recognition before the law
1. States Parties reaffirm that persons with disabilities have the right to
recognition everywhere as persons before the law.
2. States Parties shall recognize that persons with disabilities enjoy legal
capacity on an equal basis with others in all aspects of life.
3. States Parties shall take appropriate measures to provide access by
persons with disabilities to the support they may require in exercising
their legal capacity.
General Comment
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Mental capacity is not "as commonly presented, an objective, scientific and naturally
occurring phenomenon. Mental capacity is contingent on social and political contexts,
as are the disciplines, professions and practices which play a dominant role in assessing
mental capacity."
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Functional model is flawed because "it presumes to be able to accurately assess the
innerworkings of the human mind and, when the person does not pass the assessment,
it then denies him or her a core human right - the right to equal recognition before the
law."
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=> functional model of capacity = discrimination contrary to Article 12 CRPD
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An alternative take: "with appropriate safeguards, and a rights emphasis, there is no
'discriminatory denial of legal capacity' necessarily inherent in a functional test [of decision-making capacity,]-provided the emphasis is placed principally on the support
necessary for decision-making and that any appointment [of a decision-maker] is for
the purpose of protecting the person's human rights" - Australian Law Reform
Commission
Putting the Law in Context of Mental Capacity Conundrums
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